In dealing with the pain that can sometimes be caused by mesothelioma it is important to find out how to work with your doctors, nurses, and pharmacists to find the best method to control your pain. You should also find out about different types of pain medications and nondrug methods of controlling pain; how to take your medicines safely; and how to talk with your doctors and nurses about your pain and how well the treatment is working for you. This information on pain control will help you with these issues.
Having cancer does not always mean having pain. For those with pain, there are many different kinds of medicines, ways to receive the medicine, and nonmedicine methods that can relieve the pain you may have. You should not accept pain as a normal part of having cancer. When you are free of pain, you can sleep and eat better, enjoy the company of family and friends, and continue with your work and hobbies.
Only you know how much pain you have. Telling your doctor and nurse when you have pain is important. Not only is pain easier to treat when you first have it, but pain can be an early warning sign of the side effects of the cancer or the cancer treatment. Together you, your nurse, and doctor can talk about how to treat your pain. You have a right to pain relief, and you should insist on it.
Here are some facts about cancer pain that may help answer some of your questions.
There are many different medicines and methods available to control cancer pain. You should expect your doctor to seek all the information and resources necessary to make you as comfortable as possible. However, no one doctor can know everything about all medical problems. If you are in pain and your doctor suggests no other options, ask to see a pain specialist or have your doctor consult with a pain specialist. Pain specialists may be oncologists, anesthesiologists, neurologists, or neurosurgeons, other doctors, nurses, or pharmacists. A pain control team may also include psychologists and social workers.
If you have trouble locating a pain program or specialist, contact a cancer center, a hospice, or the oncology department at your local hospital or medical center. At the Mesothelioma Research Foundation of America, you can call toll free (800) 909-Meso (6376) to talk with one of our Cancer Information Specialists who will gladly give you a list of pain management facilities.
You can also call The National Cancer Institute's (NCI) Cancer Information Service (CIS) and other organizations. See a list of Resources" at the end of this document for information on these organizations.
Your doctor wants and needs to hear about what works and what doesn't work for your pain. Knowing about the pain will help your doctor better understand how the cancer and the treatment are affecting your body. Discussions about pain will not distract your doctor from treating the cancer.
Pain is best relieved when treated early. You may hear some people refer to this as "staying on top" of the pain. Do not try to hold off as long as possible between doses. Pain may get worse if you wait, and it may take longer, or require larger doses, for your medicine to give you relief.
Not everyone feels pain in the same way. There is no need to be "stoic" or "brave" if you have more pain than others with the same kind of cancer. In fact, as soon as you have any pain you should speak up. Telling the doctor or nurse about pain is not a sign of weakness. Remember, it is easier to control pain when it just starts rather than waiting until after it becomes severe.
Addiction is a common fear of people taking pain medicine. Such fear may prevent people from taking the medicine. Or it may cause family members to encourage you to "hold off" as long as possible between doses. Addiction is defined by many medical societies as uncontrollable drug craving, seeking, and use. When opioids (also known as narcotics) the strongest pain relievers available are taken for pain, they rarely cause addiction as defined here. When you are ready to stop taking opioids, the doctor gradually lowers the amount of medicine you are taking. By the time you stop using them completely, the body has had time to adjust. Talk to your doctor, nurse, or pharmacist about how to use pain medicines safely and about any concerns you have about addiction.
Some pain medicines can cause you to feel sleepy when you first take them. This feeling usually goes away within a few days. Sometimes you become drowsy because, with the relief of the pain, you are now able to catch up on the much needed sleep you missed when you were in pain. On occasion, people get dizzy or feel confused when they take pain medicines. Tell your doctor or nurse if this happens to you. Changing your dose or type of medicine can usually solve the problem.
Some medicines can cause constipation, nausea and vomiting, or drowsiness. Your doctor or nurse can help you manage these side effects. These problems usually go away after a few days of taking the medicine. Many side effects can be managed by changing the medicine or the dose or times when the medicine is taken.
Pain should be treated early. It is important to take whatever medicine is needed at the time. You do not need to save the stronger medicines for later. If your body gets used to the medicine you are taking, your medicine may not relieve the pain as well as it once did. This is called tolerance. Tolerance is not usually a problem with cancer pain treatment because the amount of medicine can be changed or other medicines can be added.
When pain is not treated properly, you may be:
When cancer pain is managed properly, you can:
Pain may be acute or chronic. Acute pain is severe and lasts a relatively short time. It is usually a signal that body tissue is being injured in some way, and the pain generally disappears when the injury heals. Chronic or persistent pain may range from mild to severe, and it is present to some degree for long periods of time. Some people with chronic pain that is controlled by medicine can have breakthrough pain this occurs when moderate to severe pain "breaks through" or is felt for a short time. It may occur several times a day, even when the proper dose of medicine is given for chronic and persistent pain.
The pain you feel may be from the cancer itself. Whether you have pain and the amount of pain you have may depend on the type of cancer, the stage (extent) of the disease, and your pain threshold (tolerance for pain). Most of the pain comes when a tumor presses on bones, nerves, or body organs. It can also be caused by the treatment or procedures for diagnosing cancer. Or you may have pain that has nothing to do with your illness or treatment. Like anyone, you can get headaches, muscle strains, and other aches and pains.
Some methods used to diagnose cancer and to see how well the treatment is working are painful. If you and your doctors agree that a diagnostic procedure is necessary, concern about pain should not prevent you from having the procedure. Usually any pain you have during and after the procedure can be relieved. The needs of the person and the type of procedure to be done determine the kinds of medicine that can be given for the pain. You may be told that the pain from the procedure can't be avoided or that it won't last long. Even so, you should ask for pain medicine if you feel the need.
If you have had an arm or leg removed by surgery, you may still feel pain or other unusual or unpleasant sensations as if they were coming from the absent (phantom) limb. Doctors are not sure why this occurs, but phantom limb pain is real; it is not "in your mind." This pain can also occur if you have had a breast removed you may have a sensation of pain at the site of the missing breast.
No single pain relief method controls phantom pain in all patients all the time. Many methods have been used to treat this type of pain, including pain medicine, physical therapy, antidepressant medicines, and transcutaneous electric nerve stimulation (TENS). If you are having phantom pain, ask your doctor, nurse, or pharmacist about what can be done.
When a tumor spreads to the spine, it can press on the spinal cord and cause spinal cord compression. The first sign of the compression is usually back and/or neck pain. It is often made worse by coughing, sneezing, or other movements. If you have this pain, it is important to notify your doctor right away. Your doctor can treat the cause of the pain and also give you medicine to relieve the pain. If you receive treatments for the compression soon after the pain occurs, complications such as bladder or bowel problems can usually be avoided. Treatments usually involve radiation therapy to shrink the tumor or surgery to remove the tumor followed by radiation.
Cancer pain is usually treated with medicine (also called analgesics) and with nondrug treatments such as relaxation techniques, biofeedback, imagery, and others. Ask your doctor, nurse, or pharmacist for advice before you take any medicine for pain. Medicines are safe when they are used properly. You can buy some effective pain relievers without a prescription or doctor's order. These medicines are also called nonprescription or over-the-counter pain relievers. For others, a prescription from your doctor is necessary.
For the small number of people for whom medicine and nondrug treatments do not work, other treatments are available: radiation therapy to shrink the tumor; surgery to remove part or all of the tumor; nerve blocks whereby pain medicine is injected into or around a nerve or into the spine to block the pain; and neurosurgery, where pain nerves are cut to relieve the pain.
The first step in developing a plan is talking with your doctor, nurse, and pharmacist about your pain. You need to be able to describe your pain to your health professionals as well as to your family or friends. You may want to have your family or friends help you talk to your health professionals about your pain control, especially if you are too tired or in too much pain to talk to them yourself.
Using a pain scale is helpful in describing how much pain you are feeling. An example of a pain scale can be found at the end of this document. Try to assign a number from 0 to 10 to your pain level. If you have no pain, use a 0. As the numbers get higher, they stand for pain that is getting worse. A 10 means the pain is as bad as it can be.
You may wish to use your own pain scale using numbers from 0 to 5 or even 0 to 100. Be sure to let others know what pain scale you are using and use the same scale each time, for example, "My pain is a 7 on a scale of 0 to 10."
You can use a rating scale to describe:
Your doctor, nurse, and pharmacist may also need to know:
You may find it helpful to keep a record or a diary to track the pain and what works best to ease it. You can share this record with those caring for you. This will help them figure out what method of pain control works best for you. You may wish to use copies of the "Pain Control Record" found at the end of this document to record this information.
Your records can include:
If one medicine or treatment does not work, there is almost always another one that can be tried. Also, if a schedule or way that you are taking medicine does not work for you, changes can be made. Talk to your doctor or nurse about finding the pain medicine or method that works best for you.
You may need a different pain medicine, a combination of pain medicines or a change in the dose of your pain medicines if:
To help make the most of your pain control plan:
Pain medicines affect different people in different ways. A very small dose may work for you, while someone else may need to take a much larger dose to obtain pain relief.
Remember, your pain control plan can be changed at any time.
The type of medicine and the method by which the medicine is given depend on the type and cause of pain. For example, constant, persistent pain is best relieved by methods that deliver a steady dose of pain medicine over a long period of time, such as a patch that is filled with medicine and placed on the skin (skin patch) or slow-release oral tablets. Below is an overview of the types of medicines used to relieve pain.
Nonopioids: Acetaminophen and nonsteroidal anti-inflammatory drugs (NSAIDs), such as aspirin and ibuprofen. You can buy many of these over-the-counter (without a prescription). For others, you need a prescription. Check with your doctor before using these medicines. NSAIDs can slow blood clotting, especially if you are on chemotherapy.
Opioids (also known as narcotics): Morphine, fentanyl, hydromorphone, oxycodone, and codeine. You need a prescription for these medicines. Nonopioids may be used along with opioids for moderate to severe pain.
Rapid-Onset Opioids: Immediate-release oral morphine. You need a prescription for these medicines. A short-acting opioid, which relieves breakthrough pain quickly, needs to be used with a long-acting opioid for persistent pain.
Antidepressants: Amitriptyline, nortriptyline, desipramine. You need a prescription for these medicines. Antidepressants are also prescribed to relieve some types of pain. Taking an antidepressant does not mean that you are depressed or have a mental illness.
Anticonvulsants (antiseizure medicines): Carbamazepine and phenytoin. You need a prescription for these medicines. Despite the name, anticonvulsants are used not only for convulsions, but also to control burning and tingling pain.
Steroids: Prednisone, dexamethasone. A prescription is needed for these medicines. They are used to lessen swelling, which often causes pain.
Some people think that if their pain becomes severe, they will need to receive injections or "shots." Actually, shots are rarely given to relieve cancer pain. There are many ways to get the medicine.
If your pain is not well controlled with one of the long-acting oral medicines, if you are having trouble taking pills, or if you are having irritating side effects, ask your doctor about trying one of the methods listed above.
Many side effects from pain medicine can be prevented. Some mild side effects that do occur, such as nausea, itching, or drowsiness, will usually go away after a few days as your body adjusts to the medicine. Let your doctor or nurse know if you are having these side effects and ask for help in controlling them.
More serious side effects of pain medicine are rare. As with the more common ones, they usually happen in the first few hours of treatment. They include trouble breathing, dizziness, and rashes. If you have any of these side effects, you should call your doctor right away.
You usually cannot take aspirin, ibuprofen, and other NSAIDs when you are on chemotherapy.
In many cases, nonopioids are all you will need to relieve your pain, especially if you "stay on top of the pain" by taking them regularly. These medicines are stronger pain relievers than most people realize. For example, certain doses of opioids given by mouth are no more effective than two or three regular tablets of aspirin, acetaminophen, or ibuprofen.
If you do not get pain relief from nonopioids, opioids will usually give you the relief you need. Most side effects from opioids can be prevented or controlled. You should discuss taking opioids along with nonopioids with your doctor, nurse, or pharmacist. The two types of medicine relieve pain in different ways. Aspirin, acetaminophen, or ibuprofen taken four times a day might help avoid or reduce the need for a stronger pain relievers.
Many people who take opioids can benefit from continuing to take regular doses of aspirin, acetaminophen, or ibuprofen.
Some pain medicines combine an opioid and a nonopioid, like aspirin or acetaminophen, in the same pill. Ask your doctor, nurse, or pharmacist how much aspirin or acetaminophen, if any, is in your prescription. They can help you figure out how much of these medicines you can take safely. Other classes of medicines, such as antidepressants and anticonvulsants, are also used to relieve certain types of cancer pain. This chart lists these other classes of medicines, how they work, and their side effects.
Nonopioids control mild to moderate pain. Some can be bought without a prescription. For detailed information on nonopioids, review the chart below.
Acetaminophen Reduces pain and fever. Large doses can injure the liver or kidneys.
Use by persons who have 3 or more alcoholic drinks per day may cause liver damage.
Acetaminophen reduces fever, so ask your doctor about what to do if your body temperature is greater than normal (98.6°F or 37°C) while you are taking this medicine.
Over the counter:
- Naproxen sodium
- Choline magnesium trisalicylate
- Fenoprofen calcium
- Meclofenamic acid
- Meclofenamate sodium
- Tolmetin sodium
Reduce pain, inflammation, and fever. NSAID medicines can have the following side effects:
- Can irritate the stomach.
- Can cause bleeding of the stomach lining, especially if combined with alcohol.
- Can cause kidney problems.
Avoid these medications if you are on anti-cancer drugs that may cause bleeding.
Aspirin and NSAIDs reduce fever, so ask your doctor about what to do if your body temperature is greater than normal (98.6°F or 37°C) while you are taking one of these medicines.
Drugs may have as many as three different names: brand, generic, and chemical. Drug companies give their products brand names. The U.S. Food and Drug Administration (FDA) approves the generic, shortened names by which drugs are usually known. Chemical names are long and tend to be hard to pronounce.
Here's an example:
Many pain relievers are available under both generic and brand names. Your doctor, nurse, or pharmacist can tell you the generic name.
Generic products are generally less costly than brand-name drugs. Sometimes medicines can have the same generic name, but are produced by different companies. Because the companies may produce the medicines differently, they may differ in the way they are absorbed by the body. For this reason, your doctor may prefer that you take a brand-name drug. You might want to ask your doctor, nurse, or pharmacist if you can use a less expensive medication. Pharmacists are careful to obtain high-quality generic products, so it is sometimes possible to make substitutions.
In addition to the main substance (aspirin, acetaminophen, or ibuprofen), some brands contain substances called additives. Common additives include:
Medicines with additives can cause some unwanted effects. For example, antihistamines sometimes cause drowsiness. This may be fine at bedtime, but it could be a problem during the day or while you are driving. Also, additives tend to increase the cost of nonprescription pain relievers. They can also change the action of other medicines you may be taking.
Plain aspirin, acetaminophen, or ibuprofen probably work as well as the same medicines with additives. But if you find that a brand with certain additives is a better pain reliever, ask your doctor, nurse, or pharmacist if the additives are safe for you. Talk with them about any concerns you may have about the drugs contained in your nonprescription pain medicines.
Before you take aspirin, acetaminophen, or other nonopioids in any form, ask your doctor or nurse if there is any reason for you not to take it and how long you can take it. NSAIDs are similar to aspirin. Either alone or in combination with other medicines, NSAIDs are useful in controlling pain and inflammation.
Some people have conditions that may be made worse by NSAIDs or by any product that contains NSAIDs. In general, NSAIDs should be avoided by people who:
Be careful about mixing NSAIDs with alcohol -- taking NSAIDs and drinking alcohol can cause stomach upset and sometimes bleeding in the lining of the stomach.
Some opioid medications also contain aspirin. If your doctor does not want you to take aspirin, be sure to read the labels carefully. If you are not sure if a medicine contains aspirin, ask your pharmacist.
The most common side effect from NSAIDs is stomach upset or indigestion, especially in older patients. Taking NSAIDs with food or milk or immediately following a meal lessens the chance of this occurring. Ask your pharmacist to tell you which NSAIDs products are less likely to upset your stomach.
NSAIDs also prevent platelets blood cells that help blood clot after an injury from working correctly. When platelets don't function as they should, bleeding is more difficult to stop.
NSAIDs can also irritate the stomach and cause bleeding. If your stools become darker than normal or if you notice unusual bruising both signs of bleeding tell your doctor or nurse. Other side effects include kidney problems and stomach ulcers.
This medicine relieves pain in a way similar to NSAIDs, but it does not reduce inflammation as well as NSAIDs. People rarely have any side effects from the usual dose of acetaminophen. However, liver and kidney damage may result from using large doses of this medicine every day for a long time or drinking alcohol with the usual dose. Moderate amounts of alcohol can produce liver damage in people taking acetaminophen.
Your doctor may not want you to take acetaminophen regularly if you are receiving chemotherapy. It can cover up a fever. The doctor needs to know about any fever because it may be a sign of infection, which needs to be treated.
These medicines are used alone or with nonopioids to treat moderate to severe pain. Opioids are similar to natural substances (endorphins) produced by the body to control pain. Some work better than others in relieving severe pain. These medicines were once made from the opium poppy, but today many are synthetic, that is, they are chemicals made by drug companies. See the table below for examples of opioids.
People who take opioids for pain sometimes find that over time they need to take larger doses. This may be due to an increase in the pain or the development of drug tolerance. Drug tolerance occurs when your body gets used to the medicine you are taking, and your medicine does not relieve the pain as well as it once did. Many people do not develop a tolerance to opioids. If tolerance does develop, usually small increases in the dose or a change in the kind of medicine will help relieve the pain.
Increasing the doses of opioids to relieve increasing pain or to overcome drug tolerance does NOT lead to addiction.
When a medicine does not give you enough pain relief, your doctor may increase the dose or how often you take it. With careful medical observation, the doses of strong opioids can be raised safely to ease severe pain. Do not increase the dose of your pain medicine on your own. If these measures do not work, the doctor may prescribe a different or additional drug. Some opioids are stronger than others, and you may need a stronger one to control your pain.
If your pain relief is not lasting long enough, ask your doctor about extended-release medicines, which can control your pain for a longer period of time. Morphine and oxycodone are made in extended-release forms. Also, a skin patch that releases the opioid fentanyl can be used.
If your pain is controlled most of the time, but occasionally breaks through, your physician may prescribe a rapid-acting medicine, such as immediate-release morphine, to give you more pain relief when it is needed.
Doctors carefully adjust the doses of pain medicines so there is little possibility of taking too much medicine. Therefore, it is important that two different doctors do not prescribe opioids for you unless they talk to one another about it.
If you drink alcohol or take tranquilizers, sleeping aids, antidepressants, antihistamines, or any other medicines that make you sleepy, tell your doctor how much and how often you take these medicines. Combinations of opioids, alcohol, and tranquilizers can be dangerous. Even small doses may cause problems.Using such combinations can lead to overdose symptoms such as weakness, difficulty in breathing, confusion, anxiety, or more severe drowsiness or dizziness.
Not everyone has side effects from opioids. Those that do occur are usually drowsiness, constipation, nausea, and vomiting. Some people might also experience dizziness, mental effects (nightmares, confusion, hallucinations), a moderate decrease in rate and depth of breathing, difficulty in urinating, or itching.
At first, opioids cause drowsiness in some people, but this usually goes away after a few days. If your pain has kept you from sleeping, you may sleep more for a few days after beginning to take opioids while you "catch up" on your sleep. Drowsiness will also lessen as your body gets used to the medicine. Call your doctor or nurse if you feel too drowsy for your normal activities after you have been taking the medicine for a week.
Sometimes it may be unsafe for you to drive a car, or even to walk up and down stairs alone. Avoid operating heavy equipment or performing activities that require alertness.
Here are some ways to handle drowsiness:
Call your doctor or nurse right away if drowsiness is severe, or if it occurs suddenly after you have been taking opioids for a while.
Opioids cause constipation to some degree in most people. Opioids cause the stool to move more slowly along the intestinal tract, thus allowing more time for water to be absorbed by the body. The stool then becomes hard. Constipation can often be prevented and/or controlled.
After checking with your doctor or nurse, you can try the following to prevent constipation:
If you are still constipated after trying all the above measures, ask your doctor to prescribe a stool softener or laxative. Be sure to check with your doctor or nurse before taking any laxative or stool softener on your own. If you have not had a bowel movement for 2 days or more, call your doctor.
Nausea and vomiting caused by opioids will usually disappear after a few days of taking the medicine. The following ideas may be helpful:
If nausea occurs mainly when you are walking around (as opposed to being in bed), remain in bed for an hour or so after you take your medicine. This type of nausea is like motion sickness. Sometimes over-the-counter medicines such as meclizine or dimenhydrinate help this type of nausea. Check with your doctor or nurse before taking these medicines.
If pain itself is the cause of the nausea, using opioids to relieve the pain usually makes the nausea go away.
Medicines that relieve nausea can sometimes be prescribed.
Ask your doctor or nurse if the cancer, some other medical condition, or other medicine you are taking such as steroids, anticancer drugs, or aspirin might be causing your nausea. Constipation may also contribute to nausea.
Some people think they are allergic to opioids if they cause nausea. Nausea and vomiting alone usually are not allergic responses. But a rash or itching along with nausea and vomiting may be an allergic reaction. If this occurs, stop taking the medicine and tell your doctor at once.
You should not stop taking opioids suddenly. People who stop taking opioids are usually taken off the medicine gradually so that any withdrawal symptoms will be mild or scarcely noticeable. If you stop taking opioids suddenly and develop a flu-like illness, excessive perspiration, diarrhea, or any other unusual reaction, tell your doctor or nurse. These symptoms can be treated and tend to disappear in a few days to a few weeks.
Several different classes of medicines can be used along with (or instead of) opioids to relieve cancer pain. They may relieve pain or may increase the effect of opioids. Others lessen the side effects of opioids. The following chart shows the classes of nonopioid medicines that might be prescribed by your doctor to help you get the best pain relief with as few side effects as possible.
Nondrug treatments are now widely used to help manage cancer pain. There are many techniques that are used alone or along with medicine. Some people find they can take a lower dose of medicine with such techniques. These methods include: relaxation, biofeedback, imagery, distraction, hypnosis, skin stimulation, transcutaneous electric nerve stimulation (TENS), acupuncture, exercise or physical therapy, and emotional support and counseling.
You may need the help of health professionals social workers, physical therapists, psychologists, nurses, or others to learn these techniques. Family and friends can also help. To find names and numbers of practitioners who specialize in and organizations knowledgeable about these techniques:
Because pain may be a sign that the cancer has spread, an infection is present, or there are problems caused by the cancer treatment, report any new pain problems to the doctor or nurse before trying to have the pain relieved by any of the following methods.
Some general guidelines for relieving pain with nondrug methods include:
Relaxation relieves pain or keeps it from getting worse by reducing tension in the muscles. It can help you fall asleep, give you more energy, make you less tired, reduce your anxiety, and help other pain relief methods work better. Some people, for instance, find that taking pain medicine or using a cold or hot pack works faster and better when they relax at the same time.
Relaxation may be done sitting up or lying down. Choose a quiet place whenever possible.
Close your eyes. Do not cross your arms and legs because that may cut off circulation and cause numbness or tingling. If you are lying down, be sure you are comfortable. Put a small pillow under your neck and under your knees or use a low stool to support your lower legs.
There are many methods. Here are some for you to try:
Visual concentration and rhythmic massage:
- Open your eyes and stare at an object, or close your eyes and think of a peaceful, calm scene.
- With the palm of your hand, massage near the area of pain in a circular, firm manner. Avoid red, raw, or swollen areas. You may wish to ask a family member or friend to do this for you.
- Breathe in deeply. At the same time, tense your muscles or a group of muscles. For example, you can squeeze your eyes shut, frown, clench your teeth, make a fist, stiffen your arms and legs, or draw up your arms and legs as tightly as you can.
- Hold your breath and keep your muscles tense for a second or two.
- Let go! Breathe out and let your body go limp.
Slow rhythmic breathing:
- Stare at an object or close your eyes and concentrate on your breathing or on a peaceful scene.
- Take a slow, deep breath and, as you breathe in, tense your muscles (such as your arms).
- As you breathe out, relax your muscles and feel the tension draining.
- Now remain relaxed and begin breathing slowly and comfortably, concentrating on your breathing, taking about 9 to 12 breaths a minute. Do not breathe too deeply.
- To maintain a slow, even rhythm as you breathe out, you can say silently to yourself, "In, one, two; out, one, two." It may be helpful at first if someone counts out loud for you. If you ever feel out of breath, take a deep breath and then continue the slow breathing. Each time you breathe out, feel yourself relaxing and going limp. If some muscles, such as your shoulder muscles, are not relaxed, tense them as you breathe in and relax them as you breathe out. Do this only once or twice for each specific muscle group.
- Continue slow, rhythmic breathing for a few seconds up to 10 minutes, depending on your need.
- To end your slow rhythmic breathing, count silently and slowly from one to three. Open your eyes. Say silently to yourself, "I feel alert and relaxed." Begin moving about slowly.
Other methods you can add to slow rhythmic breathing:
If you have trouble using these methods, ask your doctor, nurse, social worker, or pain specialist to refer you to someone who is experienced in relaxation techniques. Do not continue any technique that increases your pain, makes you feel uneasy, or causes unpleasant effects.
Learning this technique requires the help of a licensed biofeedback technician. With the help of special machines, people can learn to control certain body functions such as heart rate, blood pressure, and muscle tension. Biofeedback is sometimes used to help people learn to relax. You can use biofeedback techniques to help you relax and to help you cope with pain. This technique is usually used with other pain relief methods.
Imagery is using your imagination to create mental pictures or situations. The way imagery relieves pain is not completely understood. Imagery can be thought of as a deliberate daydream that uses all of your senses sight, touch, hearing, smell, and taste. Some people believe that imagery is a form of self-hypnosis.
Certain images may reduce your pain both during imagery and for hours afterward. If you must stay in bed or can't leave the house, you may find that imagery helps reduce the closed-in feeling; you can imagine and revisit your favorite spots in your mind. Imagery can help you relax, relieve boredom, decrease anxiety, and help you sleep.
Imagery usually works best with your eyes closed. You may want to use a relaxation technique before using imagery. The image can be something like a ball of healing energy or a picture drawn in your mind of yourself as a person without pain (for example, imagine that you are cutting the wires that send pain signals from each part of your body to your brain). Or think of a pleasant, safe, relaxing place or activity that has made you happy. Exploring this place or activity in your mind in great detail can help you feel calm.
Problems that may occur with imagery are similar to the ones that occur with the relaxation techniques.
Distraction means turning your attention to something other than the pain. People use this method without realizing it when they watch television or listen to the radio to "take their minds off" a worry or their pain.
Distraction may be used alone to manage mild pain or used with medicine to manage brief episodes of severe pain, such as pain related to procedures. Distraction is useful when you are waiting for pain medicine to start working. If the pain is mild, you may be able to distract yourself for hours. Distraction can be a powerful way of relieving even the most intense pain for awhile.
Any activity that occupies your attention can be used for distraction. Distractions can be internal, for example, such as counting, singing mentally to yourself, praying, or repeating to yourself statements such as "I can cope." Or distractions can be external, for example, doing crafts such as needlework, model building, or painting. Losing yourself in a good book might divert your mind from the pain. Going to a movie, watching television, or listening to music are also good distraction methods. Slow, rhythmic breathing can be used as distraction as well as relaxation. Visiting with friends or family is another useful distraction technique.
You may find it helpful to listen to rather fast music through a headset or earphones. To help keep your attention on the music, tap out the rhythm. You can adjust the volume to match the intensity of the pain, making it louder for very severe pain. This technique does not require much energy, so it may be very useful when you are tired.
After using a distraction technique, some people report that they are tired, irritable, and feel more pain. If this is a problem for you, you may not wish to use distraction or to be careful about which distraction methods you use and when you use them.
Hypnosis is a trance-like state of high concentration between sleeping and waking. In this relaxed state, a person becomes more receptive or open to suggestion. Hypnosis can be used to block the awareness of pain, to substitute another feeling for the pain, and to change the sensation to one that is not painful. This can be brought on by a person trained in hypnosis, often a psychologist or psychiatrist. You can also be trained to hypnotize yourself.
During hypnosis, many people feel similar to the state we experience when we begin to awaken in the morning. We can't quite open our eyes, but are very aware. We can hear sounds inside or outside our house. Our eyes remain closed, and we feel as though we either can't or don't want to wake up and open our eyes.
People can easily be taught, by a hypnotherapist, to place themselves in a hypnotic state, make positive suggestions to themselves, and to leave the hypnotic state.
Choose a hypnotherapist who is licensed in the healing arts or who works under the supervision of someone who is licensed. To locate a therapist skilled in hypnosis, contact the behavioral medicine department at a cancer center near you.
In this series of techniques, the skin is stimulated so that pressure, warmth, or cold is felt, but the feeling of pain is lessened or blocked. Massage, pressure, vibration, heat, cold, and menthol preparations are used to stimulate the skin. These techniques also change the flow of blood to the area that is stimulated. Sometimes skin stimulation will get rid of pain or lessen pain during the stimulation and for hours after it is finished.
Skin stimulation is done either on or near the area of pain. You can also use skin stimulation on the side of the body opposite the pain. For example, you might stimulate the left knee to decrease the pain in the right knee. Stimulating the skin in areas away from the pain can be used to increase relaxation and may relieve pain.
Using a slow, steady, circular motion, massage over or near the area of pain with just your bare hand or with any substance that feels good, such as talcum powder, warm oil, or hand lotion. Depending upon where your pain is located, you may do it yourself or ask a family member, friend, or a massage therapist to give you a massage. Some people find brushing or stroking lightly more comforting than deep massage. Use whatever works best for you.
To use pressure, press on various areas over and near your pain with your entire hand, the heel of your hand, your fingertip or knuckle, the ball of your thumb, or by using one or both hands to encircle your arm or leg. You can experiment by applying pressure for about 10 seconds to see if it helps. You can also feel around your pain and outward to see if you can find "trigger points," small areas under the skin that are especially sensitive or that trigger pain. Pressure usually works best if it is applied as firmly as possible without causing more pain. You can use pressure for up to 1 minute. This often will relieve pain for several minutes to several hours after the pressure is released.
Vibration over and near the area of the pain may bring temporary relief. For example, the scalp attachment of a hand-held vibrator often relieves a headache. For low back pain, a long, slender battery-operated vibrator placed at the small of the back may be helpful. You may use a vibrating device such as a small battery-operated vibrator, a hand-held electric vibrator, a large heat-massage electric pad, or a bed vibrator. Do not use a vibrator on the stomach. Avoid vibration over red, raw, tender, or swollen areas.
As with any of the techniques described, you should use what works best for you. Heat often relieves sore muscles; cold lessens pain sensations by numbing the painful area. Many people with prolonged pain use only heat and have never tried cold. Some people find that cold relieves pain faster, and relief may last longer. Also, you can alternate heat and cold for added relief in some cases.
For cold, try gel packs that are sealed in plastic and remain soft and flexible even at freezing temperatures. Gel packs are available at drugstores and medical supply stores. They can be used again and stored in the freezer. You may want to wrap the pack in a towel to make it more comfortable. An ice pack, ice cubes wrapped in a towel, or water frozen in a paper cup also work.
To use heat for pain relief, a heating pad that generates its own moisture is convenient. You can also try gel packs heated in hot water, hot water bottles, a hot, moist towel, a regular heating pad, a hot bath or shower, or a hot tub to apply heat. For aching joints, such as elbows and knees, wrap the joint in a lightweight plastic wrap (tape the plastic to itself). This retains body heat and moisture.
Avoid heat or cold over any treatment area receiving radiation therapy and for 6 months after therapy has ended.
Many menthol preparations are available for pain relief. There are creams, lotions, liniments, or gels that contain menthol. When they are rubbed into the skin, they increase blood circulation to the affected area and produce a warm (sometimes cool) soothing feeling that lasts for several hours.
To use menthol preparations, test your skin by rubbing a small amount of the substance in a circle about the size of a quarter in the area of the pain (or the area to be stimulated). This will let you know whether menthol is uncomfortable to you or irritates your skin. If the menthol does not create a problem, rub some more into the area. The feeling from the menthol gradually increases and remains up to several hours. To increase the strength and length of the feeling, you can open your skin pores with heat (e.g., shower, sun) or wrap a plastic sheet over the area after the menthol application. (Don't use a heating pad because it may cause a burn). If you are concerned about the odor, you can use the menthol when you are alone, or perhaps in the evening or through the night.
This is a technique in which mild electric currents are applied to some areas of the skin by a small power pack connected to two electrodes. The feeling is described as a buzzing, tingling, or tapping feeling. The small electric impulses seem to interfere with pain sensations. The current can be adjusted so that the sensation is pleasant and relieves pain. Pain relief lasts beyond the time that the current is applied. Your doctor or a physical therapist can tell you where to get a TENS unit, and how to use it properly.
In acupuncture, thin needles are inserted into the body at certain points and at various depths and angles. Each point controls the pain sensation of a different part of the body. When the needle is inserted, a slight ache, dull pain, tingling, or electrical sensation is felt for a few seconds. Once the needles are in place, no further discomfort should be experienced. The needles are usually left in place for between 15 and 30 minutes, depending on the condition treated. No discomfort is felt when the needles are removed. Acupuncture is now a widely accepted and proven method of pain relief. Acupuncture should be performed by a licensed acupuncturist. Ask your doctor, nurse, or social worker where to get acupuncture.
If you feel anxious or depressed, your pain may seem worse. Also, pain can cause you to feel worried, depressed, or easily discouraged. Some people feel hopeless or helpless. Others may feel embarrassed, inadequate, or angry, frightened, isolated, or frantic. These are normal feelings that can be relieved.
Try to talk about your feelings with someone you feel comfortable with doctors, nurses, social workers, family or friends, a member of the clergy, or other people with cancer. You may also wish to talk to a counselor or a mental health professional. Your doctor, nurse or the social services department at your local hospital can help you find a counselor who is specially trained to help people with chronic illnesses.
You may also want to join a support group where people with cancer meet and share their feelings about how they have coped with cancer. For information about support groups, ask your doctor, nurse, or hospital social worker. Also, many newspapers carry a special health supplement containing information about where to find support groups.
Other Pain Relief Methods
Some people have pain that is not relieved by medicine or nondrug techniques. In these cases, other treatments can be used to reduce pain.
Treatment with high-energy rays (called radiation therapy) can reduce pain by shrinking a tumor. Often, only a single dose of radiation is needed to relieve pain.
Pain cannot be felt if the nerve pathways that relay pain impulses to the brain are interrupted. To block these pathways, a neurosurgeon may cut nerves, which are usually near the spinal cord. When the nerves that relay pain are destroyed, the sensations of pressure and temperature can no longer be felt. Surgeons with special skills and expertise in pain management, preferably in consultation with other pain specialists, should perform the procedures.
A nerve block is a procedure where a local anesthetic, which may be combined with a steroid, is injected into or around a nerve or into the spine to block pain. After the injection, the nerve is no longer able to relay pain so the pain is temporarily relieved. For longer lasting pain relief, phenol or alcohol can be injected. A nerve block may cause muscle paralysis or a loss of all feeling in the affected area.
The goal of pain control is usually for a person to be as free from pain as possible and still be able to continue with normal life activities, such as work, hobbies and recreation. However, if a person has only a short time to live less than 12 months and has pain that is hard to control, comfort becomes the most important goal. Pain control methods that can cause lasting side effects may need to be used to make a patient comfortable. For example, a nerve block may cause a muscle to become paralyzed. Also, a certain medicine or higher dose of a medicine that may cause side effects, such as sleeping or resting more than usual, may need to be used to control pain or relieve restlessness.
Research on Pain Control Methods
Patient studies clinical studies or clinical trials have contributed largely to the decrease in cancer death rates in the United States . Clinical studies have also led to better pain control methods, such as continuous pain-medication infusion pumps (patient-controlled analgesia), first developed in the early 1980s.
In cancer research, a clinical trial is designed to show how a given anticancer strategy for instance, a promising drug, a new diagnostic test, or a possible way to prevent cancer affects the people who receive it. "Clinical trial" is a research term that refers to medical studies with people. These studies are the final step in the process of developing new drugs and other means to fight diseases. Once a drug has shown promise, first in the laboratory and then in animal studies, it may move on to studies with people if the U.S. Food and Drug Administration (FDA) approves. Only after a drug proves safe and effective for patients in clinical studies does the FDA grant approval for using the drug as standard treatment.
At the Mesothelioma Research Foundation of America, you can call toll free (800) 909-Meso (6376) to talk with one of our Cancer Information Specialists who will gladly give you more information about current research on pain control methods. You can also call the NCI's Cancer Information Service (CIS) at 1-800-4-CANCER (1-800-422-6237).
The resources below will give you more information for you, your family, and your doctor.
At the Mesothelioma Research Foundation of America, you can call toll free (800) 909-Meso (6376) to talk with one of our Cancer Information Specialists who will gladly assist you. Our Cancer Information Specialists will translate for you the latest scientific information into understandable language, and attempt to answer your mesothelioma questions. Are you looking for a mesothelioma specialist in your area or the latest mesothelioma clinical trials? Let us help you!
National Cancer Institute's Cancer Information Service 800 422-6237
- TTY: 1-800-332-8615
- Provides accurate, up-to-date information on cancer to patients and their families, health professionals, and the general public.
Mesothelioma Research Foundation of America : http://www.mesorfa.org/
The Mesothelioma Research Foundation of America has a mission: fund research that will lead to the quickest cure for mesothelioma. This site has information on mesothelioma specialists, treatments, clinical trials, asbestos exposure and many other pages of useful information.
Cancer.gov: http://cancer.gov - NCI's Web site provides comprehensive information about cancer causes and prevention, screening and diagnosis, treatment and survivorship; clinical trials; statistics; funding and training; and the Institute's programs and research activities.
The National Center for Complementary and Alternative Medicine (NCCAM), part of the National Institutes of Health (NIH), facilitates research and evaluation of unconventional medical practices and distributes this information to the public. Information on alternative medicine and NCCAM publications is available through:
- NCCAM's Web site at http://nccam.nih.gov
- Toll-free: 1-888-644-6226 TTY/TDY: 1-888-644-6226
- NCCAM's e-mail firstname.lastname@example.org
- Agency for Healthcare Research and Quality
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